Wednesday, February 29, 2012

Fundraiser for MS



Hey guys. =] I'm starting a fundraiser for a good cause. msisntforeverybody.blogspot.com. What will your money be assisting? It will help to make an indivisual ((me)) so I will have a better life. To name a few,
#1 meadical animal to help with stress levels, also fights of depression and much more to help lower the chanes of attacks.
#2 A cooling vest for summer and the hot days to lower risks of attacks.
#3 Apointmest with an acupunturist. That has helped imporve my postuer and back pain. Which has helped me to have a better life.
 So I'd be happy if you would consider giving. ^^ Thank you.

Wednesday, February 1, 2012

Glass Walls



Please, oh please, tell me someone else has felt that way. >.< It just occurred to me the other day, that I'm the only member in my whole entire family with MS. O-O lol So I wanted to write a little about what it's like to have MS and not knowing.
I'll tell you one thing that's forever a constant, YOU ARE NOT LIKE THEM. "Them", meaning your friends, family and almost all the strangers you meet. Those kids you see at school, or the people at work. They don't have a clue, and no one can completely, or just kinda, relate to you.
Your just a smige off, but not in any kind of bad way. ((Besides the disease being there.)) You don't get sick often. Flu season's a complete joke to you. The cold doesn't bother you much. You might actually prefer it. Your balance isn't that of a gymnast, but in time, sometimes unknowingly, you learn to cope and compensate for it. Your eyes might be bad. Or maybe just a little off. Unsteady hands are normal to some of us. After all, it's not like you can borrow someone else's for the weekend.
Always tired. FOREVER tired seems to be the game you're always unwillingly playing.
Confusion. You honestly can't remember things. So retaining information is not always too fun. I lose track of thought on the constant. Our eating habits vary, as many things with us do. Anxiety and depression always linger. Like a smudge at the corner of your peripheral. You can be quick to be snappy. You don't mean to. And sometimes you really don't want to. But sometimes, and quite often, emotions will just kick your butt. It's never a "great day" on those days, no matter what you do.

Eventually you'll get older, and things will/can get worse. The "tingaling feeling" or numbness come to visit you often or it may just stay. Eye pain, migraines, loss of sight in one eye, and trying to cop and compensate all the while... Usually no one ever knows what's wrong. Doctors don't exactly go jumping to rare or uncommon auto-immune diseases, first time around. Or an eighth for that matter. lol While all this is happening, you're trying to live your life, just like those around you. It's not easy, and I don't remember getting any memos saying it would be, but without any support or help, it can be it's own personal 'mini' hell. In a way, it's like being in isolation, but not quite alone.
For me, I say a bit of a glass box, now that people know. Always looking, but no one can touch. Well... maybe some... ;) Special people that, REALLY, get you. =] Us MSers can't help being wild cards. It's just what we are down to a molecule level. And seeing how no two are exactly a like, is something I'm just a little smug about. X]

Having MS and KNOWING.... well.... I'd have to say so far... it's relatively.... okay. With medical help you can be more balanced/and or normal. You can have energy. You can stop the numbness in you limbs. You can think clearer and keep your emotions well in check. =] So you don't drive away the people that matter. ~^-^~ One thing about treatment though, it's kinda like searching a huge warehouse for a few puzzle pieces in the dark..... and there's 'wild life' in there with you.... XD But in the end, the quality of life is much better. =] Plus it's kinda cool not having to die or lose my mind or body as soon. XD ((You'll really have to forgive me for my morbidity. 'X])) Also you can reach out and find other like yourself. =] These are the people that know about the pains and hardships we endure. In fact, my editor friend, Amanda, has a mom with MS. And she was the first((so far only)) person to seriously get what was going on.((Besides maybe the Neurologist...)) She helped me get over my fear of my weekly shots, and even gave me a trick to make it much painless. =] It's pretty cool to have a type of 'sensei'. XD

So I must give a shout out to Chris Sigler. =] ~Thank you.~ ^^

It's not all doom and gloom guys. Your life still has the potential to be ridiculously awesome. X] Hell! I climbed Mt. Takao last summer, all the way to the tippy top. =] I ran a 5k the night of my 22nd birthday. ((Last September)) By the way, NEVER did that before. Back in high school I couldn't even run the half mile! XD *Not exactly in shape* lol I'm picking up my 4th language in college with out too much difficulty. I drink, travel, shop, hang with my groups, go to salons, spas, and even thinking of going sky diving soon.
((But I'm not going to swim in the ocean. That's just plain scary.)) '_' XD
You CAN find love AND keep it. You can have a family, if you choose. The most important thing is that you get out, and make a difference. You don't have to go save the world. Just make a difference to yourself. And if you can handle it, maybe to your loved ones also. =] After all, I never said the glass box was permanent... ;]